Our Team

  • A woman with brown hair smiling and wearing a black top, standing outdoors with a house in the background.

    Darlene Shelton - President/Founder

    Professional Experience:
    Owner, Business Advantages – Specializing in business and accounting consulting.

    Personal Connection:
    Grandparent to a grandson with severe hemophilia and two granddaughters with moderate/mild hemophilia.

    Affiliations & Memberships:

    Board Member, Missouri EMS for Children

    Member, National Association of EMTs (NAEMT)

    Member, EMS for Children

    Home Medical Advisory Committee Member, Pediatric Pandemic Network (PPN)

    Community & Volunteer Leadership:
    Dedicated years of leadership and service through churches, youth groups, community initiatives, and bleeding disorder organizations, both in the U.S. and internationally.

  • Close-up of a smiling woman with light skin and brown hair.

    Ashley Gregory - Vice President

    Professional Experience:
    Northern California Bleeding Disorders Foundation Associate Director, Education and Advocacy, 2018-Current

    Rare Patient Voice – Patient Advocate, 2013-2016

    Treatment Innovations – Peer Seeking Safety Facilitator, 2013-2018

    Personal Connection & Experience:
    Patient and parent of adult children with multiple conditions

    Affiliations & Leadership Roles:

    Fair Time for Women National Coalition Co- Founder/Director, 2022-2025

    Hemophilia Federation of America – Executive Board Member, 2015-2022

    Hemophilia Council of California – Advocacy Committee Member, 2019-2022

    Central California Alliance for Health – Advisory Board Member, 2008 - 2022

    California Whole Child Model Advisory Board – Member, 2008 - 2022

  • Front view of a smiling woman with short blonde hair, wearing glasses, a colorful dress with red, black, and white patterns, and a necklace with large beads.

    Tammy Jones – Secretary

    Professional Experience:

    Arkansas RAN Ambassador for the National Organization for Rare Disorders (NORD)

    Personal Connection & Experience:

    One of five family members with von Willebrand Disease (VWD)

    Caregiver to a loved one with Type 1 Diabetes

    Advocacy & Leadership:

    Community Advocate for 17 years

    Member, National Hemophilia Foundation (NHF) Planning Committee

    Member, Victory for Women Task Force

    Panelist Speaker for VWD Families in Texas & Tennessee

    Texas Women’s Retreat Planning Committee – 9 years

    Past NHF Chapter Board President & Treasurer

  • Brandon Shelton – Treasurer

    Brandon Shelton – Treasurer

    Professional Experience:
    Bachelor’s Degree in Business Management

    Project Manager, Rick Shipman Construction, Inc.

    Personal Connection & Experience:

    Uncle to a nephew and two nieces with hemophilia

    Dedicated volunteer with youth groups and international mission programs

  • Close-up of a young woman with wavy brown hair, slight smile, wearing a black top, in a dimly lit setting with purple and blue lights in the background.

    Andrea Nelson

    Professional Experience:

    Bachelor’s Degree in Sociology – Emphasis in Family, Health & Aging; Minor in Gerontology
    Certified Massage Therapist
    Certified Home Management ProviderFinancial Associate

    Personal Connection & Experience:
    Living with Adrenal Insufficiency

    Advocacy & Leadership:
    Rare Disease Advocate & Volunteer for 12 years

    Played a key role in the development and passage of the State EMS Treatment Bill (SF153-2019)

    Engaged in family outreach and advocacy efforts in Washington, D.C.


  • Portrait of a man with short brown hair, beard, and mustache, wearing a dark suit, white shirt, and black tie, smiling slightly, indoors with blurred background.

    Brian O’Conner

    Professional Experience:

    EMT-Paramedic – Special Operations Response Team

    Protocol Review Committee Member

    Research and Professional Development Contributor

    Personal Connection & Experience:

    Stroke survivor with PFO closure, cognitive impairment, and PTSD

    Parent to a daughter diagnosed with microcephaly with neuronal migration anomalies, leading to cognitive, speech, and physical impairments, as well as epilepsy and startle-provoked epilepsy

  • Close-up of a woman with blonde hair wearing large tortoise-shell glasses and bright red lipstick. She is smiling and holding a water bottle. She is outdoors in a park with trees and a parking lot in the background.

    Latasha Holt

    Professional Experience:

    Ph.D. in Educational Curriculum & Instruction – Emphasis in Reading, Special Education, and ESL

    17 Years of Teaching Experience – K-12 and Higher Education

    Author – Revisiting John Dewey: Applying What He Said 100 Years Ago to Today’s Need

    Personal Connection & Experience:
    Living with Adrenal Insufficiency and Epilepsy

    Mother of three children, including one with adrenal insufficiency and epilepsy

    Advocate for the whole child, dedicated researcher, and writer

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